Please read the latest PrimalKind update on why we’re Sorry We’re Closed Temporarily.
I had some fantastic news this week, my doctors were finally able to schedule my first lot of follow-up scans (after several delayed chemo treatments, because my blood levels were to low & this made me feel like it was never going to happen), but I finally had my scans & I got my results this week.
My cancer has shrunk!!! Some tumors more than others, but they have all shrunk & this is an amazing result, especially considering the terrible prognosis my doctors have given me. I am super happy to finally get some positive results & we’ve been celebrating all week.
While this is fantastic news (I really can’t express this enough), it’s clear I still have a long way to go, so I’ve now decided to step up my efforts & start adding more ammunition to my cancer fighting protocol. I’m currently following a cyclic keto diet & fasting a minimum of 14 hours prior to getting chemo, then I get a pretty heavy dose of 3 chemo drugs (Irinotecan, Oxaliplatin, & Fluorouracil) which takes around 50 consecutive hours. During the 50 hours I allow myself to have a little more carbs, then I go back to a strict keto diet.
This protocol is obviously working for me & it’s definitely helped shrink my cancer, but at this rate it will take me over a year to be cancer free (if everything stays consistent?), so I’ve been looking into what else I can do to help improve my outcome.
Unfortunately, my Oncologist has been very dismissive of all the alternate therapies I’ve been asking about, Metformin, etc, despite all the studies & evidence showing their potential, & he still refuses to believe my keto diet has been beneficial to my treatment.
I personally would expect doctors dealing with patients on death row (sorry I know this sounds extreme) but as someone who’s been diagnosed with terminal cancer & only given a short time to live (3 years), I would expect my doctor to be a bit more open to even discussing the possibilities of alternate therapies, but unfortunately my Oncologist won’t even consider the options.
I guess this is why so many cancer patients start taking treatment into their own hands & start doing things behind their doctors back, which is not good for anyone! You’ve got patients reading all kinds of bias information on the internet & essentially risking their own lives, when they have qualified doctors who could be helping these patients test the treatments more safely & then use any beneficial treatments to help other patients, but it seems most doctors are more afraid of risking their own careers than actually helping patients, so they just prescribe the “Standard of Care” treatments, which we all know has a very low survival rate. Or as my Oncologist likes to keep telling me “this is not a cure, we’re just trying to prolong your life as much as possible”, there is so many things wrong with this, but my goal is to get rid of the cancer, so I’m going to do everything I can do to survive.
Considering this, I’ve now reached out to the Care Oncology Clinic (COC), who actually utilise off-label medications, like Metformin, etc, to help patients fight cancer (in conjunction with chemo, radiation, etc). Their protocol is based on lots of scientific research & they’ve shown lots of fantastic results & stories of patients beating cancer. My plan is to start following the COC protocol together with my cyclic keto diet & fasting, in conjunction with my chemo treatment. I will follow this until I get my next lot of scans done in around 3 months, then I can measure its success against my previous scans, to see if its providing any additional benefit (aka shrinking my cancer more than last time). Considering the low-cost, low-risk & low-toxicity of the COC protocol, & the potential rewards, then I think it’s definitely worth it for me to at least try it. I figure at worst it will do nothing, but it has the potential to help my treatment, & that’s a pretty safe risk I’m willing to take. (PS: I have no affiliation with the COC, I found them through my own studies & believe they can help my situation, but I hope by sharing this info, it might be able to help others).
I’d really like to thank everyone for their continued support & overwhelming kindness, this is definitely helping me stay positive & helping me throughout my treatment. I will continue to keep you all updated on my progress & let you know once we plan to re-open PrimalKind.
I truly have to thank everyone for their support & understanding through this whole process. I swear I have the best customers, I’ve received so many wonderful messages & this has really meant a lot to me & my family.
It’s now been around a month from my original post, so I wanted to give everyone a brief update on my progress so far.
I’m currently having chemo fortnightly, & I just had my 3rd dose of chemo yesterday. I will have a total of 5 rounds of chemo in my first treatment schedule, then they will organise a CT Scan to see how well the treatment is working & decide if my treatment will need to continue or if they’ll need to change it to something else, but fingers crossed it all goes well.
I feel like I’ve been quite lucky with my chemo so far, sure I’m tired after treatment & although I initially lost a lot of weight, I’ve now been able to maintain a healthy weight, I haven’t been very sick or had any other severe side effects to date, touch wood! I had some cold sensitivity the first week after treatment, so I need to wear gloves when touching cold stuff & my hair has started falling out this last week (which was expected considering the cocktail of drugs they’re giving me) so I decided to cut all my hair off yesterday ): but it’s supposed to grow back healthier afterwards, so that’s at least something to look forward to.
I’ve been following my own cyclic keto diet during treatment, despite my Oncologist’s disapproval & his lack of understanding of the keto diet, but to be fair he just wants to make sure I have enough energy to go through chemo. However after we discussed the facts & the large body of scientific evidence that shows how cancer cells thrive on glucose, he did say it was ultimately up to me. My diet has been going well so far, I will allow myself to have a little extra carbs on the 2 days after treatment (with the theory that the extra glucose could help feed the chemo drugs to the cancer cells), then I switch back to my whole food keto diet (with extra protein, because my body needs additional protein for recovery). I then do a 14 to 24 hour fast prior to getting chemo (with the theory that this could help lower my glucose levels & put extra stress on the cancer cells & make the cancer cells more vulnerable to chemo). My chemo cocktail is also given together with a glucose drip, so I figure this extra glucose could also help feed the chemo drugs to the cancer cells, especially considering I’ve fasted prior to treatment & the cancer cells are probably starving & looking for as much glucose as they can find, well that’s my theory anyways.
I have based my diet on Dr. Otto Warburgs Metabolic Theory of Cancer, the studies from Peter L Pedersen, Young Hee Ko, Thomas Seyfried, Dominic D’Agostino, etc, & several other clinical studies, here are some links for anyone interested in learning more. I’ve also been trying to compile my own Keto Cancer notes, so please let me know if you’d like any further info.
Otto Warburg: https://en.wikipedia.org/wiki/Otto_Heinrich_Warburg
Peter Pederson & Young Ko: http://pedersenlab.com/pedersenlab/Research/Default.aspx
Thomas Seyfried: https://www.bc.edu/bc-web/schools/mcas/departments/biology/people/faculty-directory/thomas-seyfried.html
Dominic D’Agostino: https://ketonutrition.org/resources
Keto Oncology Nutrition: https://www.remissionnutrition.com/oncologynutrition
Metabolic Cancer Treatment Study, Podcast: https://www.youtube.com/watch?v=tL8rQ3aNvhs
Metabolic Cancer Treatment Study, Transcript: https://mercola.fileburst.com/PDF/ExpertInterviewTranscripts/Interview-Christofferson-Slocum-MetabolicallySupportedTherapies.pdf
Please note: I am not a doctor & you should seek qualified medical advice before starting any diet, especially when associated with chemotherapy or other high risk treatments.
Once again, massive thanks to everyone for their wonderful & thoughtful messages of support & understanding through my treatment, this has meant a lot to me & my family, & really makes me want to get back to running PrimalKind asap.
Original Post 3rd-Jan-2018.
As many of you know, PrimalKind is my own personal recipe for the ultimate nutritionally complete superfood smoothie & PrimalKind is more than just a business to me, it is my personal passion project. However I wanted to share a little more of my personal background with all our PrimalKind friends & followers, to help explain why we’re Sorry We’re Closed Temporarily.
I really like the concept of nutritionally complete meals, however as I learnt more about nutrition I found myself aligning with the science behind Paleo & Keto nutrition, especially with the science supporting a whole range of health benefits, from reversing the symptoms of type 2 diabetes (or in my case reversing the symptoms of pre-diabetes), to the latest studies highlighting how following a healthy keto diet can help improve longevity & health span (aka living healthier for longer), through to helping with a whole range of medical benefits (& this is normally where the story ends, however not today).
One of the main medical benefits for me following a Paleo / Keto diet is the studies with cancer. This will come as a surprise to many of the people around me, but in 2015 I was actually diagnosed with cancer & had it surgically removed. I actually find it very hard to talk about my own experience with cancer, even with people close to me, so I guess I will have a lot of explaining to do, but I think I’m ready to talk about it now.
I have learnt from my experience & this has been one of the main driving factors for myself studying nutrition. I secretly like to think of PrimalKind as my own kind of Breaking Bad story, however instead of creating Heisenberg’s blue ice, after I was diagnosed with cancer I wanted to create the ultimate nutritionally complete smoothie. Initially for my own health, but it has quickly become popular with the truly health conscious & nutritionally educated customers, from Bio-hackers, to Nutritionists, to Surgeons & many others, & this has helped me grow an organic business that I’m truly proud of.
However I will now have to take a back seat with PrimalKind & re-focus my attention on my own health. I haven’t been feeling 100% for a little while now & I’ve just put this down to my busy life, working a full time job & running PrimalKind after hours (which has pretty much become a full time job itself). However after a recent check-up with my doctor, I have now been diagnosed with a type of colon cancer (a different type of cancer than I had previously). I have now started going through the process to have it removed, however it has become clear that I will need to spend a lot more time getting my health back on-track.
Unfortunately this means I will need to temporarily pause both my full time job & PrimalKind, to focus on getting better & to take the necessary time required to adjust to my new lifestyle. However I’m positive this will be one of my driving factors for getting better as soon as possible, so I can get back to my passion project of creating PrimalKind.
I would truly like to thank everyone for their support to date & understanding through this temporary time in my life. I hope to be back on top of my health & back to running PrimalKind as soon as possible, & I’ll be sure to let you all know once everything is back to normal again.
Live Primal, Be Kind, Choose PrimalKind (once it’s back in stock).